There is an almost overwhelming amount of information available about hospice, hospice care and palliative care on the web, in books and in periodicals. We have researched and gathered the following links to make your search for information easier and less time consuming. Each website that we have listed may be viewed free of charge.
We have also included brief summaries for each link so that you may focus your search on your specific areas of interest. Each of these links is an excellent information source that will help you better understand hospice, hospice care, palliative care and other end of life issues.
Please don’t forget that we are always available to you at any time to discuss any issues that you either cannot find satisfactory answers for or prefer to discuss in person rather than conduct research on your own.
Hospice Care Information Sources
The American Hospice Foundation
This site covers the full range of hospice care and includes helpful articles, publications and resources relating to end-of-life issues and hospice care. Excellent information, clearly written, easily read and understood.
On Our Own Terms
This PBS website summarizes the four-part, six-hour series that took Bill Moyers from the bedsides of the dying to the front lines of a movement to improve end-of-life care. The site combines multimedia, online articles and resources for further research. Very well done.
American Academy of Hospice and Palliative Medicine
This site is most helpful for its End of Life/Palliative Care Educational Resources link and its “related sites” resources link.
The National Hospice and Palliative Care Organization
The oldest non-profit organization devoted exclusively to hospice care. Use the Hospice and Palliative Care link for an excellent source of information on all aspects of hospice care.
Hospice Net – Death and Dying, Caregiving and Grief
An outstanding collection of information in one location. In addition to general information about hospice, this site also provides specific information of interest to hospice patients, caregivers and children. The topic of bereavement is also detailed.
Americans for Better Care of the Dying
Go right to the “Reading Room” link for discussions of topics including “Living With Illness”, “Finding Meaning”, “Helping Loved Ones”, “Getting the Help You Need”, “Talking With Your Doctor”, “Managing Symptoms” and others.
An excellent website for professionals and the general public. In their own words, “Growth House, Inc., provides this portal as your international gateway to resources for life-threatening illness and end of life care. Our primary mission is to improve the quality of compassionate care for people who are dying through public education and global professional collaboration. Our search engine gives you access to the Internet’s most comprehensive collection of reviewed resources for end-of-life care.”
The “End of Life” section covers hospice and palliative care issues, plus information on practical matters such as estate planning, wills and power of attorney. The section on “Grief and Loss” could also be very helpful.
Partnership for Caring provides free state-specific advance directive documents that can be opened as PDF (Portable Document Format) files. The documents include of living wills and/or medical powers of attorney forms with clear instructions for completing them, as well as advice on how to handle the notable points of law. If you have additional questions, they also list their toll free hotline. Note that you should always consult with your own attorney before using forms such as these.
Medical Information Sources
A comprehensive source of information on medical conditions, diseases, wellness and prescription drugs. The site also includes a medical dictionary and encyclopedia, as well as online interactive tutorials on a variety of medical conditions and diseases.
This site is for those who want to conduct very detailed research on medical conditions and diseases. PubMed, a service of the National Library of Medicine, includes over 15 million citations for biomedical articles back to the 1950’s. These citations are from MEDLINE and additional life science journals. PubMed also includes links to many sites providing full text articles and other related resources.
This website of the National Cancer Institute is an excellent source of information for your questions regarding cancer.
Bereavement Information Sources
Bereavement Hospice Net is also listed above as a hospice care resource, but we list it here again because its section on bereavement is excellent.
GriefNet.org is an Internet community of persons dealing with grief, death, and major loss. It consists of a number of email support groups and two web sites. GriefNet’s integrated approach to on-line grief support provides help to people working through loss and grief issues. Its companion site, KIDSAID, provides a safe environment for children and parents to find information and ask questions.